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Home / Research / The Candlelighters Supportive Care Research Centre

The Candlelighters Supportive Care Research Centre

Supportive care logo

A world-leading centre that will save lives, reduce suffering, and bring hope to young people and their families.

Did you know that of all children who die with cancer, 1 in 3 will die not because of the cancer, but because of the side effects of treatment? Worse still, research into reducing these side effects for children is virtually non-existent. Amazing progress has been made in understanding and treating childhood cancers. Today, around 80% of children or young people diagnosed with cancer survive.

1 in 3 Children Graphic
But despite advances in curative medicine, little has been done to improve the experience of living through and beyond cancer.

Children often receive cancer treatments designed for adults and the impact on their smaller bodies can be severe. They suffer horrible side effects which can be traumatic, permanent, and even deadly.

In 2023, we launched The Candlelighters Supportive Care Research Centre to find out how paediatric oncologists can better treat and reduce these side effects.

Less than 5% of cancer research focuses on the care needs of patients - especially young people. We fund this vital but underfunded area of cancer care.

Meet Ralph

Ralph was visiting London with his family when he suddenly fell ill. What seemed like tonsillitis turned out to be lymphoma. Treatment began immediately, and while the cancer responded, the side effects were devastating. The chemotherapy made Ralph violently sick. It decayed his teeth and five had to be removed. His skin was painfully sore, and his immune system so weak, he developed sepsis.

No child should have to go through what Ralph did. But for too many young people with cancer, this is their reality. Our centre exists to change that - to find better ways to care for children like Ralph, ease their suffering, and save young lives.

No one can prepare you for the side effects. He couldn’t walk, he swelled up from steroids, he would scream in agony.

Ralph’s mum, Cleo

What is supportive care?

During cancer treatment, there are different types of care patients may receive.

  • Curative care is the treatment that is given to cure a patient, like chemotherapy to kill cancer cells.
  • Supportive care refers to all other types of care except the treatment of the cancer itself.

Supportive care might be using medication to relieve pain from treatment or antibiotics to reduce infections. Supportive care is crucial for children and young people with cancer. It can help prevent or reduce side effects, giving them the fullest life they can have during treatment, and increase their chance of survival.

Watch our 'Inside Supportive Care' video series

Episode 1: What is supportive care?

 
Episode 2: 18 months of the Supportive Care Research Centre

The Candlelighters Supportive Care Research Centre

The Candlelighters Supportive Care Research Centre, led by Professor Bob Phillips and headquartered at The University of York, unites world-leading experts to find better ways to care for children with cancer.

With a £1 million, five-year investment, we’re driving research that can transform treatment experiences and improve young lives - in the UK and internationally. Together, we’re raising the profile of supportive care and changing what it means to face cancer as a child.

The centre is driving new research, forming academic partnerships, and enabling further studies in children’s supportive cancer care. We continue to seek funding to keep this momentum and expand our impact for the thousands of lives it will improve, save, and transform.

Current projects

Since the launch of the centre, great progress has been made in the following areas...

Preventing mucositis: Using red light therapy to prevent severe mouth ulcers which can leave young people unable to eat or swallow. These ulcers can extend from the mouth to the entire digestive tract and be excruciatingly painful for young people.

Preventing nausea and vomiting: Exploring ways to reduce persistent sickness and nausea which are detrimental to children's wellbeing and can lead to weight loss and heightened anxiety around receiving treatment.

Reducing hospital stays: Finding how to determine which young people can safely return home, minimising stress and disruption to their daily lives, and getting them back to the surroundings they are most comfortable in.

Patient and family involvement: Working with patients and families to understand what matters most to them and using their experiences to shape the centre’s research.

In the longer term, we want to make lasting changes...


Young lives saved

Fewer children and young people dying from side effects caused by cancer treatment.

Team

Forward-thinking researchers

A team of new, talented scientists safeguarding the future of supportive care research.

Cross with Heart

Holistic care

Better nutritional interventions and improved psychological and social support alongside cancer treatment for children.

Graph

Research security

Sustainable income to support high-quality research that will benefit children now and in the future.

World

International improvements

A Yorkshire-based, world-class research centre, impacting care around the globe.

This life-changing research is only possible with funding

We’re looking for compassionate individuals, businesses, and Foundations to help fund this pioneering project - one that’s transforming how children and young people experience cancer treatment. Together, we can reduce the devastating side effects that so many young patients face. Together, we can give children with cancer the fullest life possible, and build a future where no child’s life is lost to the side effects of treatment.

If you believe every child with cancer deserves a better quality of life, please join us. Your support can save lives, ease suffering, and bring hope to young people and families.

Contact us

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Candlelighters Supporting the families of children with cancer
8 Woodhouse Square,
Leeds LS3 1AD
0113 887 8333 [email protected]
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